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Archive for the ‘ disability’ Category

An overview of autism

Thursday, April 3rd, 2014

Psychologist Henry S Roane, PhDHenry Roane, PhD gives an overview of autism spectrum disorder (ASD) – the possible causes, diagnosis, and treatment protocols – and a new study from The Centers for Disease Control (CDC) that shows a significant increase in autism rates.  Roane is the G. S. Liptak Professor of Child Development in the Department of Pediatrics at Upstate Medical University. Read the story: Autism rates now 1 in 68 U.S. children: CDCFamily Behavior Analysis Clinic at Upstate.  For more information, call 464-3950.


The story behind “The Broken and the Whole”

Wednesday, February 19th, 2014

Rabbi Charles ShermanRabbi Charles Sherman, spiritual leader of Temple Adath Yeshurun in Syracuse, shares the poignant story of his family’s journey through tragedy, and how it inspired the writing of his memoir The Broken and the Whole: Discovering Joy After Heartbreak: Lessons from a Life of Faith.  Sherman’s book is set for release March 11, and available for pre-order now. Read review.

Events:
March 11, 7 pm at Holy Cross Church in Dewitt – Join Monsignor Robert Yeazel and Rabbi Charles Sherman as two faith leaders from our community talk frankly about the big questions in life.  The evening marks the release of Rabbi Sherman’s critically-acclaimed book.

March 12, 7 pm at Barnes and Noble in Dewitt – Talk and signing with the author.


The benefits of pre-kindergarten education

Thursday, October 31st, 2013

Retired Syracuse University psychology professor Peter Knoblock, PhDPeter Knoblock, PhD, is a leading authority on autism and Asperger’s syndrome. Forty years ago, he founded the Jowonio School to serve students with special needs and advocate for inclusive classrooms. Knoblock shares his perspective on the value of a pre-kindergarten education, and his views on full-day versus half-day kindergarten.  Read the story.


Adapting physical education to include those with disabilities

Wednesday, October 30th, 2013

Nienka Dosa, MDPeyton SefickUpstate developmental pediatrician Nienke Dosa, MD, MPH, talks about the main issues that remain regarding children with disabilities in terms of access to physical education and sports activities. She is joined by Peyton Sefick, a Syracuse University graduate assistant and power wheelchair soccer player who has been highly active in promoting adaptive sports. They are both involved in the Fitness Inclusion Network (Fit-IN), a collaborative initiative launched in 2013 with support from the Upstate Foundation/Golisano Children’s Hospital, SUNY Cortland Department of Physical Education, and the Burton Blatt Institute at Syracuse University. Dosa is a senior fellow at Syracuse University’s Burton Blatt Institute and the first professor of Child Health Policy at Upstate.  Sefick was selected to play on Team USA, which won the 2012 FIPFA World Cup, and is the team captain for CNY United, which won the 2012 Champions Cup.

For more information about power soccer, call (315) 345-1941 or (315) 546-3706, or email seffam@yahoo.com or peytonsefick@gmail.com.
Resources: PEcentral.org - The premier site for health & physical education teachers, parents and students. The Adapted Physical Education National Standards (APENS)

An overview of adaptive physical education

Friday, October 11th, 2013

James Rimmer, PhDJames Rimmer, PhD, the Lakeshore Foundation Endowed Chair in Health Promotion and Rehabilitation Sciences, was the keynote speaker for a recent conference on adaptive physical education. He shares a broad overview of where we are nationally with adaptive physical education in terms of policy and practice. Dr. Rimmer also directs the National Center on Health, Physical Activity and Disability. For more information, call 1-800-900-8086.


‘Peds to Parents’ – Special dental concerns for children with special needs

Wednesday, October 2nd, 2013

Patrick Smith, DDSPatrick Smith, DDS, residency program director of the dental service and clinic at Upstate, describes the special dental concerns for children with special needs, and tips and suggestions to encourage good dental hygiene.

Read the blog: Peds to Parents – Notes from Upstate Professionals to Parents and Caregivers


Living an active life with Parkinson’s disease

Monday, August 5th, 2013

Dragos L Mihaila, MDCarol Sames, PhDDragos Mihaila, MD, director of the Parkinson’s Disease and Movement Disorders Program at Upstate Medical University will talk about Parkinson’s disease, a progressive disorder of the nervous system that affects movement  He is joined by Carol Sames, PhD, director of Upstate’s Vitality Fitness Program to describe how people can live an active life with the disease.

The Onondaga County Department of Aging and Youth sponsors two groups that meet monthly to provide education and support to patients and families dealing with this disease: On the first Monday of each month, 12:30 – 2 pm, at The Hearth at Greenpoint, 150 Old Liverpool Road, Liverpool; and on the second Tuesday of each month, 6 – 7:30 pm, at The Villas of Summerfield, 100 Summerfield Village Lane, Onondaga Hill off Velasko Road.  For information, call 315-435-2362 x140 or email cstevenson@ongov.net.


Chronic Obstructive Pulmonary Disease (COPD) and the benefit of support groups

Thursday, June 27th, 2013

Joseph G Sorbello, MSEd, RRT, RTRoy VanOrderJoseph Sorbello, RT, chair of the Respiratory Therapy Program in Upstate’s College of Health Professions, talks about emphysema and chronic bronchitis, together referred to as Chronic Obstructive Lung Disease, or COPD.  Sorbello is joined by Roy VanOrder, PhD, who started a COPD and Alpha-1 support group in Syracuse called ZephyrCuse, funded through the American Lung Association and the Alpha-1 Anti-trypsin Foundation. For more information on the support group call (315) 299-4367, or email lvanorder2@verizon.net.


Ongoing challenges of families touched by mental illness

Wednesday, June 12th, 2013

LLoyd Sederer, MDSpecial guest Lloyd Sederer, MD, medical director of the NY State Office of Mental Health, talks about the ongoing challenges of families touched by mental illness, and his new book The Family Guide to Mental Health Care.   What’s Up At Upstate: How to recognize mental illness in a loved one

 

 


‘Peds to Parents’ – Ballet therapy for children with Cerebral Palsy

Wednesday, June 12th, 2013

Nienke P Dosa, MD, MPHLisa Neville OTRUpstate developmental pediatrician Nienka Dosa, MD, talks about a new guidebook written by dancers for dancers, using ballet therapy for children with cerebral palsy. She is joined by occupational therapist and ballet instructor Lisa Neville, OT, who is collaborating to put the program into practice at Jowonio preschool, with the help of Syracuse Nottingham high school dancer students.  View the guidebook: Ballet for Children with Cerebral Palsy
The Center for Development, Behavior, and Genetics at Upstate Golisano Children’s Hospital.
Read the blog: Peds to Parents – Notes from Upstate Professionals to Parents and Caregivers

To donate to the Madeline Cote Endowment, a fund to support pediatric patients with cerebral palsy and their families during treatment at Upstate Medical University, go to the Foundation for Upstate Medical Universityand search for ‘Cote’.  For more information: 315-464-7561.


Upstate MD graduate performs high profile double arm transplant

Wednesday, May 29th, 2013

Patrick Basile, MD2003 Upstate College of Medicine graduate Patrick Basile, MD, describes a remarkable 13-hour double arm transplant he performed, as part of a large team, on an infantryman who lost all four limbs in Iraq. Dr. Basile is the assistant chief of plastic surgery and director of microsurgery at Walter Reed National Military Medical Center.  Read more about Dr. Basile at What’s Up At Upstate blog, read the story: Staten Island soldier and double-arm transplant recipient Brendan Marrocco prepares to leave hospital


What is 22q deletion syndrome?

Monday, May 6th, 2013

Robert Roger Lebel, MD,Robert Roger Lebel, MD, professor and chief of medical genetics at Upstate Medical University, will describe a genetic disorder called the chromosome 22q deletion, also known as velo-cardio-facial syndrome (VCFS).  The syndrome may cause a variety of health problems, ranging from heart defects and cleft palate to feeding difficulties, immune problems, a unique pattern of learning disabilities and more.  

More information: The Center for Developmental Behavior and Genetics at Upstate Medical University, or call 315-464-6395 or 315-464-6395.   The 22q Foundation